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Profile created March 13, 2008 |
Tic Talk: Living with Tourette Syndrome, A 9-year-old Boy's Story in His
Own Words (2007) by Dylan Peters
with Zachary Wendland, Illustrator
A third grader writes about
Tourette Syndrome. His book reveals a maturity and wisdom far beyond his
years.
Tourette Syndrome (TS) is a neurological disorder that affects
approximately 100,000 Americans, according to the National Institutes of
Health. It most often strikes youngsters between the ages of six and nine.
Dylan Peters was diagnosed with TS when he was only four.
With Dylan, the
TS began as it most often does, with facial tics, head jerking, and
protracted blinking of the eyes. These repetitive motions (sometimes
accompanied by vocal sounds such as gurgling or repeating words and
phrases) understandably attract a lot of unwanted attention. The emotional
impact on those with
TS can be staggering. They have no control whatsoever over the tics and
vocalizations; neither can they avoid the stares and whispered comments.
Dylan understands all too well. For a long time, he wanted his family to
keep his
TS a secret, afraid that it would make him the object of ridicule among
his classmates.
His mother told him, "If life gives you a lemon, make lemonade." Dylan
realized she was right. "When I thought about it," he says, "I could see
that things really could be a whole lot worse."
With his family's and his teacher's support, Dylan decided to speak to his
classmates about his
TS. It went better than he ever could have hoped. The whole experience
gave him the idea of writing a book for other kids with
TS.
Dylan, who is about to enter the fourth grade, is the author of Tic
Talk--Living with
Tourette Syndrome: A 9-year-old Boy's Story in His Own Words. In it, he
shares what he has learned of tolerance and acceptance during the five
years he's had
TS. In a style that is often humorous and always insightful, Dylan helps
others, young and old, understand
TS and the enormous pressures this little-understood affliction places
on those who have it and on those who love them.
"Dylan has done what most of us would not even think of doing, especially
at such a young age," writes Jim Eisenreich in his foreword to Tic Talk.
"He's had the questions, but instead of waiting for the answers, he went
ahead and made his own," adds Eisenreich, a former Major League Baseball
player. Eisenreich, too, has suffered from
Tourette Syndrome since he was a child.
The book is filled with heartwarming illustrations, all done by Dylan's
friend, Zachary Wendland.
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